Uncovering Personal Accounts of Chronic Disease Patients through Social Media

Overview

About this study

This research takes a dual perspective (patients and physicians) to examine social media use by chronic disease patients who share their narratives of illness online. Specifically,

  • Patient Perspective: How do chronic disease patients share their illness experiences via social media and how do the technological features of social media influence these behaviors?
  • Physician Perspective: How physicians use these platforms? Can patients’ accounts and narratives of illness be channeled to physicians?

Participation eligibility

Participant eligibility includes age, gender, type and stage of disease, and previous treatments or health concerns. Guidelines differ from study to study, and identify who can or cannot participate. There is no guarantee that every individual who qualifies and wants to participate in a trial will be enrolled. Contact the study team to discuss study eligibility and potential participation.

Inclusion Criteria:

  • We will be conducting interviews with subjects from three groups:
    • Mayo Clinic patients
    • Mayo clinic physicians
    • Other Mayo staff involved in facilitating communication over the Internet

 

Participating Mayo Clinic locations

Study statuses change often. Please contact the study team for the most up-to-date information regarding possible participation.

Mayo Clinic Location Status

Rochester, Minn.

Mayo Clinic principal investigator

Sami Safadi, M.D.

Closed for enrollment

Mankato, Minn.

Mayo Clinic principal investigator

Sami Safadi, M.D.

Closed for enrollment

More information

Publications

Publications are currently not available

Additional contact information

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Phone: 800-664-4542 (toll-free)

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