A Study to Establish a Cystic Fibrosis Patient Registry for Mayo Clinic Jacksonville, Fl

Overview

About this study

The purpose of this study is to collect data on individuals with cystic fibrosis (CF) to better understand the illness and ultimately improve the care and survival of those with CF.

Participation eligibility

Participant eligibility includes age, gender, type and stage of disease, and previous treatments or health concerns. Guidelines differ from study to study, and identify who can or cannot participate. There is no guarantee that every individual who qualifies and wants to participate in a trial will be enrolled. Contact the study team to discuss study eligibility and potential participation.

Inclusion Criteria:

  • Diagnosis of cystic fibrosis (CF).

Exclusion Criteria: 

  • Not diagnosed with CF.

 

Participating Mayo Clinic locations

Study statuses change often. Please contact the study team for the most up-to-date information regarding possible participation.

Mayo Clinic Location Status Contact

Jacksonville, Fla.

Mayo Clinic principal investigator

Margaret Johnson, M.D.

Open for enrollment

Contact information:

Tarik Haddad M.D.

(904) 956-3271

Haddad.Tarik@mayo.edu

More information

Publications

Publications are currently not available