Neuro-Oncology Care Priorities of Patients and Caregivers

Overview

About this study

The purpose of this study is to conduct semi-structured interviews with patients who have primary and metastatic CNS tumors as well as caregivers of these patients. 

Participation eligibility

Participant eligibility includes age, gender, type and stage of disease, and previous treatments or health concerns. Guidelines differ from study to study, and identify who can or cannot participate. There is no guarantee that every individual who qualifies and wants to participate in a trial will be enrolled. Contact the study team to discuss study eligibility and potential participation.

Inclusion Criteria:

  • Age ≥18 years.
  • Diagnosis of primary or metastatic CNS tumor with a primary caregiver, should patient wish to involve one.
  • Willing and able to participate in a semi-structured interview lasting approximately 60 minutes. Dyad interviews conducted for participants who elect to involve a caregiver.
  • Willing and able to participate in a single follow-up interview. Dyad follow up interviews conducted for participants who elect to involve a caregiver.

Exclusion Criteria: 

  • Uncontrolled and/or intercurrent illness which limits participation in study interview.
  • Vulnerable populations: pregnant or nursing persons, prisoners, or persons lacking capacity for understanding.
  • Unable to read and speak English.
    Note: English does not need to be primary language.

Note: Other protocol defined Inclusion/Exclusion criteria may apply.

Eligibility last updated 1/18/24. Questions regarding updates should be directed to the study team contact.

Participating Mayo Clinic locations

Study statuses change often. Please contact the study team for the most up-to-date information regarding possible participation.

Mayo Clinic Location Status Contact

Rochester, Minn.

Mayo Clinic principal investigator

Ugur Sener, M.D.

Open for enrollment

Contact information:

Cancer Center Clinical Trials Referral Office

(855) 776-0015

More information

Publications

Publications are currently not available