Integrating Patients and Families into the Clinical and Outcomes Research Process

Overview

About this study

The purpose of this study is to get patients and their families more involved in the research process and find out how being more involved in research affects satisfaction and engagement health care experiences.

Participation eligibility

Participant eligibility includes age, gender, type and stage of disease, and previous treatments or health concerns. Guidelines differ from study to study, and identify who can or cannot participate. There is no guarantee that every individual who qualifies and wants to participate in a trial will be enrolled. Contact the study team to discuss study eligibility and potential participation.

Inclusion Criteria:

  • Willingness to participate in the study and on social media
  • Adequate English skills to provide consent/assent and respond to questionnaires
  • Access to necessary technology and skills to use it
  • Membership in pediatric otolaryngology PFAC or patient in the aerodigestive or pediatric cochlear implant programs

Exclusion Criteria: 

  • Lack of the above

Participating Mayo Clinic locations

Study statuses change often. Please contact the study team for the most up-to-date information regarding possible participation.

Mayo Clinic Location Status

Rochester, Minn.

Mayo Clinic principal investigator

Karthik Balakrishnan, M.D., M.P.H.

Closed for enrollment

More information

Publications

Publications are currently not available

Additional contact information

Non-cancer trials contact form

Phone: 800-664-4542 (toll-free)

International patient clinical studies questions