Neuroendocrine Tumors - Patient Reported Outcomes

Overview

About this study

The purpose of this study is to partner with patients on comparative effectiveness research (CER) to achieve the goal of alleviating undue toxicity, and optimizing effectiveness and sequencing of therapy for patients with Neuroendocrine Tumors (NET).

Participation eligibility

Participant eligibility includes age, gender, type and stage of disease, and previous treatments or health concerns. Guidelines differ from study to study, and identify who can or cannot participate. There is no guarantee that every individual who qualifies and wants to participate in a trial will be enrolled. Contact the study team to discuss study eligibility and potential participation.

Inclusion Criteria:

- Adults age 18 years or older at time of NET diagnosis.

- Diagnosis of GEP-NET or lung NET between 1/1/2018 and 12/31/2023, as evidenced by:

- medical record information on diagnoses and/or medications and/or treatments
and/or test results and/or clinical notes and/or procedures and/or encounters and/or tumor characteristics; and
- patient self-report of their diagnosis.

Exclusion Criteria:

- Any GEP-NET/Lung NET prior to 1/1/18, as evidenced by:

- Medical record information on diagnoses and/or medications and/or treatments and/or test results and/or clinical notes and/or procedures and/or encounters and/or
tumor characteristics; and

- patient self-report of their diagnosis.

- No evidence of NET treatment at the study site as evidenced by medical record information on provider encounters and / or patient is deceased per vital status.

Note: Other protocol defined Inclusion/Exclusion Criteria may apply.

Eligibility last updated 9/28/23. Questions regarding updates should be directed to the study team contact.

Participating Mayo Clinic locations

Study statuses change often. Please contact the study team for the most up-to-date information regarding possible participation.

Mayo Clinic Location Status Contact

Rochester, Minn.

Mayo Clinic principal investigator

Thorvardur Halfdanarson, M.D.

Open for enrollment

Contact information:

Thorvardur Halfdanarson M.D.

(507) 284-2511

Halfdanarson.Thorvardur@mayo.edu

More information

Publications

Publications are currently not available