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A Study to Evaluate Sex and Age Differences in Ehlers Danlos Syndrome Patients

Overview

About this study

The purpose of this study is to determine whether serum biomarkers and comorbidities differ between subjects with hEDS/HSD vs. other non-hypermobile EDS subtypes and whether sex and/or age differences exist, and to determine whether serum biomarkers and comorbidities differ between subjects with hEDS vs. HSD and whether sex and/or age differences exist.

Participation eligibility

Participant eligibility includes age, gender, type and stage of disease, and previous treatments or health concerns. Guidelines differ from study to study, and identify who can or cannot participate. There is no guarantee that every individual who qualifies and wants to participate in a trial will be enrolled. Contact the study team to discuss study eligibility and potential participation.

Inclusion Criteria:

  • Subjects 16 years or older.
  • Subjects diagnosed with Ehlers Danlos Syndromes (EDS), Hypermobile EDS (hEDS) or Hypermobile Spectrum Disorder (HSD) at the Mayo Clinic/Florida (MCF) EDS Clinic.
  • Ability to sign informed consent.

Exclusion Criteria:

  • Lack of ability or refusal to sign informed consent.
  • Vulnerable populations.
  • Children under 16 years of age.
  • Pregnant (based on patient history, not confirmed by pregnancy testing).

Participating Mayo Clinic locations

Study statuses change often. Please contact the study team for the most up-to-date information regarding possible participation.

Mayo Clinic Location Status Contact

Jacksonville, Fla.

Mayo Clinic principal investigator

DeLisa Fairweather, Ph.D.

Open for enrollment

Contact information:

DeLisa Fairweather Ph.D.

(904) 953-6740

Fairweather.DeLisa@mayo.edu

More information

Publications

Publications are currently not available

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CLS-20489712

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