A Study to Address End-of-Life Disparities Among African Americans with Mild Cognitive Impairment and Dementia

Overview

About this study

The purpose of this study is to reduce disparities in end-of-life care by increasing engagement in advance care planning among African Americans with mild cognitive impairment and early dementia and their caregivers.

Participation eligibility

Participant eligibility includes age, gender, type and stage of disease, and previous treatments or health concerns. Guidelines differ from study to study, and identify who can or cannot participate. There is no guarantee that every individual who qualifies and wants to participate in a trial will be enrolled. Contact the study team to discuss study eligibility and potential participation.

The study population will include primarily elderly African American individuals – men and women – with mild cognitive impairment and dementia and their caregivers of any gender and New Town community members who agree to participate in an intervention related to end-of-life care planning.  Community members involved in the study will work with the study team to develop and implement the intervention.  The study is designed to assess the impact of a refined advanced care planning intervention on knowledge about advance care planning and readiness to complete an advance directive in an effort to increase end-of-life care planning in African Americans with dementia and their caregivers.  In order to accomplish this, human subjects within the African American community are necessary to assist with the study design and the implementation of the intervention.

 

The study aims to recruit at least 50 African Americans in the New Town Community who have self-reported mild cognitive impairment or dementia and their caregivers.  Recruitment of these participants will be through IRB-approved procedures and flyers, with distribution through the New Town Community by community members and study staff who have participated in the development of the program.

Participating Mayo Clinic locations

Study statuses change often. Please contact the study team for the most up-to-date information regarding possible participation.

Mayo Clinic Location Status

Jacksonville, Fla.

Mayo Clinic principal investigator

Maisha Robinson, M.D.

Closed for enrollment

More information

Publications

Publications are currently not available
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CLS-20491316

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