Exploring attitudes toward return of genetic research results to family among diverse populations

Overview

About this study

The overall objective of this research is to understand the attitudes, expectations, and preferences regarding return of genetic research results among individuals of diverse racial, ethnic, and sociodemographic backgrounds. Specifically, we aim to: Describe perceptions of cancer research, cancer risk, and the nature of cancer genetic research information among diverse individuals (by self-identified race and ethnicity), including similarities and differences between racial and ethnic groups. The study also aims to describe similarities and differences among diverse individuals (by self-identified race and ethnicity) regarding concepts of family ownership, view about privacy, and control of genetic information (including individual research participant data ownership).

Participation eligibility

Participant eligibility includes age, gender, type and stage of disease, and previous treatments or health concerns. Guidelines differ from study to study, and identify who can or cannot participate. There is no guarantee that every individual who qualifies and wants to participate in a trial will be enrolled. Contact the study team to discuss study eligibility and potential participation.

Inclusion Criteria:

18 years of age or older
Speak English or Spanish
Identify as African American/black or Hispanic/Latino or American Indian
Provide informed consent

Exclusion Criteria:

Under age 18 or without the capacity to provide oral informed consent
Do not speak English or Spanish

Participating Mayo Clinic locations

Study statuses change often. Please contact the study team for the most up-to-date information regarding possible participation.

Mayo Clinic Location	Status
Rochester, Minn. Mayo Clinic principal investigator Wesley Petersen, Ph.D.	Closed for enrollment
Jacksonville, Fla. Mayo Clinic principal investigator Wesley Petersen, Ph.D.	Closed for enrollment

Mayo Clinic Location

Status

Rochester, Minn.

Mayo Clinic principal investigator

Wesley Petersen, Ph.D.

Closed for enrollment

Jacksonville, Fla.

Mayo Clinic principal investigator

Wesley Petersen, Ph.D.

Closed for enrollment

More information

Publications

Publications are currently not available

Clinical Trials