Appointment Companion Tool

Overview

About this study

The purpose of this study is to pilot the patient appointment companion (PAC) tool in use with patients with amyloidosis and multiple myeloma (MM). Patients with hematologic malignancies have unique information and communication needs compared to those with solid tumors. The internet has shifted the dynamics of the patient–doctor relationship, toward one of more mutual participation whereby power and responsibility are shared. The PAC was designed as a patient-centered, user-friendly platform that aids patients’ preparation for their visits with clinicians. PAC provides an online tool that empowers patients to direct their treatment preferences and care alongside their physician teams per the provisions of HIPAA. Data will be collected to:

Assess the feasibility of using PAC to prepare for clinic vists; and
Assess the helpfulness/acceptability of the tool.

Participation eligibility

Participant eligibility includes age, gender, type and stage of disease, and previous treatments or health concerns. Guidelines differ from study to study, and identify who can or cannot participate. There is no guarantee that every individual who qualifies and wants to participate in a trial will be enrolled. Contact the study team to discuss study eligibility and potential participation.

Inclusion Criteria:

Diagnosis of multiple myeloma (MM) and/or amyloidosis (Systemic AL or ATTR).
Age ≥ 18 years old.
Planned monitoring and/or treatments as per standard of care for the incident disease.
Anticipated return to clinic within 1-4 weeks of study enrollment, for a clinic visit that includes pre-visit PAC.

Exclusion Criteria:

Age < 18 years old.
Diapated return to clinic within 1-4 weeks of study enrollment, for a clinic visit that includes pre-visit PAC.

Participating Mayo Clinic locations

Study statuses change often. Please contact the study team for the most up-to-date information regarding possible participation.

Mayo Clinic Location	Status	Contact
Rochester, Minn. Mayo Clinic principal investigator Morie Gertz, M.D.	Closed for enrollment	Contact information: Ann Engebretson L.P.N. (507) 293-1965 Engebretson.Ann@mayo.edu

Mayo Clinic Location

Status

Contact

Rochester, Minn.

Mayo Clinic principal investigator

Morie Gertz, M.D.

Closed for enrollment

Contact information:

Ann Engebretson L.P.N.

(507) 293-1965

Engebretson.Ann@mayo.edu

More information

Publications

Publications are currently not available

Clinical Trials