Patient Centered Approaches to Gene Editing Research Study

Overview

About this study

The purpose of this study is to elicit clinicians’ and scientists’ views, ethical concerns, clinical aspirations and governance needs regarding prenatal gene editing technologies.

Participation eligibility

Participant eligibility includes age, gender, type and stage of disease, and previous treatments or health concerns. Guidelines differ from study to study, and identify who can or cannot participate. There is no guarantee that every individual who qualifies and wants to participate in a trial will be enrolled. Contact the study team to discuss study eligibility and potential participation.

Inclusion Criteria:

≥ 18 years of age.
Fall into one of the following categories: clinical geneticist, genetic counselor, scientist, investigator, physician working at, or are members of, professional organizations in the spaces of genetics and/or human reproduction.
Willing and able to participate in study activities in either Spanish or English.

Exclusion Criteria:

Under 18 years of age.
Unable or lack the capacity to provide consent; Individuals who are not clinicians or scientists working at, or are members of, professional organizations in the spaces of genetics and/or human reproduction.
Does not speak English or Spanish.

Note: Other protocol defined Inclusion/Exclusion Criteria may apply.

Eligibility last updated 12/1/22. Questions regarding updates should be directed to the study team contact.

Participating Mayo Clinic locations

Study statuses change often. Please contact the study team for the most up-to-date information regarding possible participation.

Mayo Clinic Location	Status	Contact
Rochester, Minn. Mayo Clinic principal investigator Karen Meagher, Ph.D.	Open for enrollment	Contact information: Kirsten Riggan M.S., M.A. (507) 284-2046 Riggan.Kirsten@mayo.edu
Jacksonville, Fla. Mayo Clinic principal investigator Megan Allyse, Ph.D.	Open for enrollment	Contact information: Laura Pacheco-Spann M.S. (904) 953-0408 PachecoSpann.Laura@mayo.edu

Mayo Clinic Location

Status

Contact

Rochester, Minn.

Mayo Clinic principal investigator

Karen Meagher, Ph.D.

Open for enrollment

Contact information:

Kirsten Riggan M.S., M.A.

(507) 284-2046

Riggan.Kirsten@mayo.edu

Jacksonville, Fla.

Mayo Clinic principal investigator

Megan Allyse, Ph.D.

Open for enrollment

Contact information:

Laura Pacheco-Spann M.S.

(904) 953-0408

PachecoSpann.Laura@mayo.edu

More information

Publications

Publications are currently not available

Clinical Trials