International Hip Dysplasia Registry (IHDR) with Follow-up to Skeletal Maturity

Overview

About this study

The purpose of this study is to develop a general prospective registry that includes all elements of the DDH spectrum, from mild dysplasia of a reduced hip, to an irreducible dislocation.

Participation eligibility

Participant eligibility includes age, gender, type and stage of disease, and previous treatments or health concerns. Guidelines differ from study to study, and identify who can or cannot participate. There is no guarantee that every individual who qualifies and wants to participate in a trial will be enrolled. Contact the study team to discuss study eligibility and potential participation.

Inclusion Criteria:

  • Patients aged < 18 years old at time of initial diagnosis.
  • Referred for DDH screening due to specific risk factors OR diagnosed with DDH.
  • Diagnosis confirmed with appropriate ultra-sonographic or radiographic imaging.
  • Care provided by one or both natural or adoptive parents registry.

Exclusion Criteria:

  • Known or suspected neuromuscular, collagen, chromosomal, or lower extremity congenital anomalies.
  • Teratologic hip dislocation (syndromic-associated dislocations).
  • Patients 18 years of age and over at diagnosis.
  • Patients that have received prior treatment/surgery for DDH management without appropriate imaging or documentation.

Eligibility last updated 8/16/22. Questions regarding updates should be directed to the study team contact.

Participating Mayo Clinic locations

Study statuses change often. Please contact the study team for the most up-to-date information regarding possible participation.

Mayo Clinic Location Status Contact

Rochester, Minn.

Mayo Clinic principal investigator

Emmanouil Grigoriou, M.D.

Open for enrollment

Contact information:

Angela Severson

(507) 538-3560

Severson.Angela2@mayo.edu

More information

Publications

Publications are currently not available
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CLS-20561830

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