Study of Health-related Quality of Life in Patients with Vascular Malformation-Overgrowth Syndromes
Rochester, MN
The purpose of this study is to use a validated survey tool to find health related quality of life scores for patients with vascular malformations or vascular malformation-overgrowth syndromes, to assess for potential differences in health related quality of life between patients with vascular malformation versus vascular malformation-overgrowth syndromes, as well as stratify across other variables including demographics and disease severity, and to compare health related quality of life in our patient population to that of the general population as well as to other well-studied chronic medical conditions.