Clinical Trials

Mayo Clinic will work with several other institutions to further classify Myhre disease. Retrospective clinical data will be obtained from the medical record and compiled to describe the disease and its characteristics. Data will be pulled from the medical record, including by not limited to, laboratory reports, growth charts, neuropsychiatric reports, clinical summaries, and demographics. Clinical photographs and other clinical imaging (such as vascular scans and radiographs) may be utilized in publications of the cases.

In-depth qualitative interviews will be performed to explore beliefs of laryngotracheal transplant candidates, their caregivers, and clinicians about their perceptions and experience of the laryngotracheal transplantation process. In addition, we will explore the quality of life of patients with a laryngectomy.