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Examining Prenatal Decision-Making for Infants with Life-Threatening Illness – A Qualitative Study of Parental and Provider Experiences in Prenatal Consultation
Rochester, Minn.
The study is being done to determine effective and ineffective advanced communication methods neonatologists use to reach decisions with families regarding the care for infants with severe life-threatening diagnoses, specifically, the non-initiation or provision of resuscitation for infants with likely very poor but uncertain prognoses for whom survival may be associated with a severely diminished quality of life. The study will also examine how parents are able to understand the information given to them by neonatologists during the prenatal consultations under conditions of emotional and physical distress and how they experience the consultation.
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