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Clinical Studies
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Development and Validation of a New Disease-Specific Quality of Life Index for Sporadic Vestibular Schwannoma
Rochester, Minn.
The purpose of this study is to develop and validate a new disease-specific, quality-of-life (QOL) index for sporadic Vestibular Schwannoma (VS) that addresses key shortcomings of previous instruments.
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Electronic Health Record (EHR) Sampling with Supplemental Survey (EHRSSS)
Rochester, Minn.
The purpose of this study is to assess the feasibility of using EHR data to supplement survey data for the Behavioral Risk Factor Surveillance System (BRFSS), with the ultimate goal of generating population estimates and actionable insights on methods for scalability, validation, and interpretation.
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Evaluation of a Clinical Tool to Assess Patient Experience of Treatment and Self-Management (PETS-Now) (PETS-Now)
Rochester, Minn.
The purpose of this study is to assess whether the PETS-Now point-of-care tool affects perceived care quality. Additionally, we will assess the feasibility and acceptability of this iPad tool for use in patients with multiple chronic conditions (MCCs).
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Field Study of an Electronic Patient-Reported Outcome (ePRO) Monitoring and Alert System to Improve Post-surgical Pain Self-management
Jacksonville, Fla.,
Rochester, Minn.,
Scottsdale/Phoenix, Ariz.
The purpose of this study is to test an automated alert function of an ePRO monitoring and reporting tool for use in post-surgical pain self-management.
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Patient Experience with Treatment and Self-care Clinical Tool: Patient and Healthcare Provider Discussion Groups
Rochester, Minn.
The purpose of this study is formative, qualitative investigation to direct the adaptation of a tool for use in patients with multiple chronic conditions (MCCs) and will be based on the Patient Experience with Treatment and Self-management (PETS) questionnaire.
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Pilot Test of an Electronic Patient-Reported Outcome (ePRO) System to Monitor Post-Surgical Pain Self Management (ePRO)
Jacksonville, Fla.,
Rochester, Minn.
The purpose of this study is to develop and pilot test an electronic patient-reported outcome (ePRO) monitoring and reporting tool for use in post-surgical pain self-management.
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Prospective Validation of a Self-Report Measure of Treatment Burden in People with Multiple Chronic Conditions
Rochester, Minn.
The purpose of this study is to examine the measurement validity of the questionnaire "Patient Experience with Treatment and Self-management" in a large group of people who have multiple chronic health conditions.
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