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A Study to Compare FEIBA to Alternative Blood Products in Treating Children After Cardiac Surgery
Rochester, MN
The purpose of this study is to determine the effectiveness and safety of aPCC FEIBA in children undergoing cardiac surgery with cardiopulmonary bypass.
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A Study to Evaluate Perceptions of Midline Sternotomy Scar in Children and Young Adults
Rochester, MN
The purpose of this study is to evaluate how children and young adults perceive their midline sternotomy scars (in terms of appearance, associated symptoms, consciousness, satisfaction with appearance/symptoms, and impact on quality of life)?
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Role of Sildenafil for Fontan Associated Liver Disease (SiFALD) Study
Rochester, MN
The purpose of this study is to determine if the medication, sildenafil (also known as Revatio), can slow or stop the progression of liver disease in patients who previously had a Fontan operation.
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National Collaborative to Improve Care of Children With Complex Congenital Heart Disease
Rochester, MN
The purpose of this initiative is to improve care and outcomes for infants with HLHS by expanding the NPC-QIC national registry to gather clinical care process, outcome, and developmental data on infants with HLHS between diagnosis and 12 months of age, by improving the use of standards into everyday practice across pediatric cardiology centers, and by engaging parents as partners in the process.
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Reducing Smoke Exposure in Children Facing Surgery
Rochester, MN
The purpose of this study is to see whether advice by clinicians to cigarette smokers who are parents of children undergoing elective surgery can reduce the exposure of these children to secondhand smoke in the time around surgery.