Remote Blood Biomarker Monitoring in Frontotemporal Lobar Degeneration

Overview

About this study

The purpose of this study is to collect and analyze blood specimens from individuals carrying known familial frontotemporal lobar degeneration (f-FTLD) mutations compared to a control group of individuals without known f-FTLD mutations.

Participation eligibility

Participant eligibility includes age, gender, type and stage of disease, and previous treatments or health concerns. Guidelines differ from study to study, and identify who can or cannot participate. There is no guarantee that every individual who qualifies and wants to participate in a trial will be enrolled. Contact the study team to discuss study eligibility and potential participation.

Inclusion Criteria:

Male or female.
Ages 18-85.
Provision of signed and dated informed consent form.
Stated willingness to comply with all study procedures and availability for the duration of the study.
Is enrolled in ALLFTD.
Is a member of a family with a known mutation in C9orf72, GRN or MAPT.

Exclusion Criteria:

Any permanent contra-indication to repeated blood draws, such as poor venous access.
Any conditions or circumstances which, in the opinion of the investigator, would not allow participation in the study.

Participating Mayo Clinic locations

Study statuses change often. Please contact the study team for the most up-to-date information regarding possible participation.

Mayo Clinic Location	Status	Contact
Rochester, Minn. Mayo Clinic principal investigator Bradley Boeve, M.D.	Closed-enrolling by invitation What is this? (?) "Close" Not open to everyone who meets the eligibility criteria, but only those invited to participate by the study team.	Contact information: Kevin Nelson (507) 284-1324 Nelson.Kevin1@mayo.edu
Jacksonville, Fla. Mayo Clinic principal investigator Neill Graff Radford, M.D.	Closed-enrolling by invitation What is this? (?) "Close" Not open to everyone who meets the eligibility criteria, but only those invited to participate by the study team.	Contact information: Ann Worthen (904) 953-4361 Worthen.Ann@mayo.edu

Mayo Clinic Location

Status

Contact

Rochester, Minn.

Mayo Clinic principal investigator

Bradley Boeve, M.D.

Closed-enrolling by invitation

Contact information:

Kevin Nelson

(507) 284-1324

Nelson.Kevin1@mayo.edu

Jacksonville, Fla.

Mayo Clinic principal investigator

Neill Graff Radford, M.D.

Closed-enrolling by invitation

Contact information:

Ann Worthen

(904) 953-4361

Worthen.Ann@mayo.edu

More information

Publications

Publications are currently not available

Clinical Trials