Advancing Prevention of Pulmonary Fibrosis

Overview

About this study

The purpose of this study is to learn more about pulmonary fibrosis and how it develops to determine if the disease can be detected early, before the lung is permanently scarred. This study will enroll participants who are not currently diagnosed with pulmonary fibrosis, but who have family members with pulmonary fibrosis. Because there is an increased risk within affected families, this cohort will allow us to learn how pulmonary fibrosis develops, and how the lungs change over time.

Participation eligibility

Participant eligibility includes age, gender, type and stage of disease, and previous treatments or health concerns. Guidelines differ from study to study, and identify who can or cannot participate. There is no guarantee that every individual who qualifies and wants to participate in a trial will be enrolled. Contact the study team to discuss study eligibility and potential participation.

Inclusion Criteria:

Unaffected first degree relative from Familial Interstitial Pneumonia families (two or more family members with IIP).
Age at least 40 years old and younger than 75 years old.

Exclusion Criteria:

Diagnosed with known (physician-diagnosed) pulmonary fibrosis prior to informed consent.
Other genetic diseases associated with interstitial lung disease.
Pregnant women.

Eligibility last updated 10/7/21. Questions regarding updates should be directed to the study team contact.

Participating Mayo Clinic locations

Study statuses change often. Please contact the study team for the most up-to-date information regarding possible participation.

Mayo Clinic Location	Status	Contact
Rochester, Minn. Mayo Clinic principal investigator Teng Moua, M.D.	Open for enrollment	Contact information: Shannon Daley C.C.R.C., CCRP (507) 293-0637 Daley.Shannon@mayo.edu

Mayo Clinic Location

Status

Contact

Rochester, Minn.

Mayo Clinic principal investigator

Teng Moua, M.D.

Open for enrollment

Contact information:

Shannon Daley C.C.R.C., CCRP

(507) 293-0637

Daley.Shannon@mayo.edu

More information

Publications

Publications are currently not available

Clinical Trials