Hidradenitis Suppurativa Registry

Overview

About this study

The purpose of this study is to comprehensively characterize Hidradenitis Suppurativa (HS) from clinical and biological perspectives. Study subjects will be individuals with HS. Consented subjects will complete electronic surveys and undergo comprehensive dermatologic evaluations at designated time points. Study subjects will be asked to donate skin swabs, saliva samples, stool samples, blood samples, hair samples and/or skin specimens.

Collected biospecimens will be stored in a local tissue bank for future study. Subjective measures will be collected to characterize the effect of disease on quality of life.

Participation eligibility

Participant eligibility includes age, gender, type and stage of disease, and previous treatments or health concerns. Guidelines differ from study to study, and identify who can or cannot participate. There is no guarantee that every individual who qualifies and wants to participate in a trial will be enrolled. Contact the study team to discuss study eligibility and potential participation.

Inclusion Criteria:

Male or female, ≥ 10 years of age.
Diagnosis of Hidradenitis Suppurativa (HS) by a dermatologist or practitioner experienced in making a diagnosis of HS.
Written informed consent (and assent when applicable) obtained from subject or subject’s legal representative and ability for subject to comply with the requirements of the study.
Immediate family members (for saliva and genetics data).

Exclusion Criteria:

Inability to give informed consent or unavailability of a parent/guardian who is able and willing to give informed consent.

Participating Mayo Clinic locations

Study statuses change often. Please contact the study team for the most up-to-date information regarding possible participation.

Mayo Clinic Location	Status	Contact
Rochester, Minn. Mayo Clinic principal investigator Afsaneh Alavi, M.D.	Open for enrollment	Contact information: Mika Takaichi M.D., Ph.D. (507) 284-4673 Takaichi.Mika@mayo.edu

Mayo Clinic Location

Status

Contact

Rochester, Minn.

Mayo Clinic principal investigator

Afsaneh Alavi, M.D.

Open for enrollment

Contact information:

Mika Takaichi M.D., Ph.D.

(507) 284-4673

Takaichi.Mika@mayo.edu

More information

Publications

Publications are currently not available

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